Tag Archives: personal

hacks

Simple hacks for life with Parkinson’s

Simple solutions are often best, even when dealing with something as complicated as Parkinson’s. In this inspiring talk, Mileha Soneji shares accessible designs that make the everyday tasks of those living with Parkinson’s a bit easier. “Technology is not always it,” she says. “What we need are human-centered solutions.”

  • Description: ““Smart” in today’s world has become synonymous to high tech, and the world is only getting smarter and smarter day by day. But why can’t smart be something that’s simple and yet effective? All we need is a little bit of empathy and some curiosity, to go out there, observe. But let’s not stop at that. Let’s find these complex problems. Don’t be scared of them. Break them, boil them down into much smaller problems, and then find simple solutions for them. Test these solutions, fail if needed, but with newer insights to make it better. Imagine what we all could do if we all came up with simple solutions. What would the world be like if we combined all our simple solutions? Let’s make a smarter world, but with simplicity.
  • Source Link: http://ift.tt/1QPcIcL

posted on our Facebook fan page: Stop Parkinson’s Disease

hands

Older vs. early onset Parkinson’s – Is there a difference in goals?

What are your desires for Parkinson’s? Is there an essential difference between older people with Parkinson’s and those with the early onset version of the disease? What are your thoughts?

“We want a cure,” said Kelly Campbell Thomson. “I want to be cured, but (most) older people with Parkinson’s want better medications and comfort, which is fine … but there’s where the line is drawn.

“I don’t want comfort, I want the cure.”

posted on my Facebook page: Parkinson’s News

One Creative Dad

How do you tell your kids you have Parkinson’s?

How to tell your kids you have Parkinson’s? See the creative steps this Dad took to tell his kids, and the world, about “a very tough disease”.

See the animated poem that he created:

posted on my Facebook page: Parkinson’s News

Monica Hall

Deep brain simulation for late-stage, early onset Parkinson’s

Deep brain simulation for late-stage, early onset Parkinson’s. I’m trying not to cover palliative care too much, but thought this might provide some hope for those for whom medications no longer work well.

posted on my Facebook page: Parkinson’s News

Cheryl Barnes

Parkinson’s gradual deterioration a comfort for Cheryl Barnes

Parkinson’s gradual deterioration is certainly preferable to a stroke. Sufferers can also celebrate small victories, like outlasting their prognosis.

posted on my Facebook page: Parkinson’s News

Viv Mackay

Recumbent tricycle is an excellent exercise option for Parkinson’s sufferers

This cyclist diagnosed with Parkinson’s Disease is inspiring others to ride recumbent tricycles. “I’ve decided I’m going to darn well do what I can do to stay on top of it, which is basically cycling and exercising. Although you could say I’m fighting it, I recognize that it’s a degenerative disease, and you can’t win. You can just try to modify it.” says Viv Mackay.

posted on my Facebook page: Parkinson’s News

Steve Ludzik

Early onset Parkinson’s with a history of head trauma and Crohn’s disease

Hockey coach Steve Ludzik takes 22 pills daily to control his Parkinson’s symptoms. He is sure that blows to his head is the cause of his early onset Parkinson’s. But he has also suffered from Crohn’s disease, an inflammatory condition, for all of his adult life.

posted on my Facebook page: Parkinson’s News

Dave Parker

Parkinson’s runs in the family of this former Pirates slugger

Does Parkinson’s run in families? Unfortunately, Dave Parker’s sister is battling a more advanced stage of the disease.

posted on my Facebook page: Parkinson’s News

Tim Vickers

Will a cure be too late for Tim Vickers?

Tim Vickers, a Parkinson’s disease sufferer, says ‘It won’t kill me, but it might make me wish it had’.

posted on my Facebook page: Parkinson’s News